If you have a child with cerebral palsy you might be interested in finding out more about our Family Support Service.
Glenys Evans is Bobath’s Family Support Coordinator. She is a founder parent of Bobath Wales and has been involved with the charity since 1989 in numerous roles including secretary to the steering committee, trustee, and volunteer, she eventually joined the staff at Bobath in 1998.
Glenys’ son Thomas is now an adult in his 30’s but this means she has a wealth of knowledge and understanding to share with families who attend Bobath. As part of her role Glenys meets with every family as they attend Bobath for a block of therapy, this enables her to get to know all the children and offer support to every family.
She often discusses topics such as, What is cerebral palsy? How will it affect my child? sleep issues, feeding, school/statementing, home adaptations, behaviour, benefits, adapted vehicles, Wills/legacies, after school activities, respite, equipment. Often her role involves just being available at the end of the phone or email as she really understands the emotional journey parents are on and the day to day stresses that affect our families.
Glenys is often the first point of contact for families who contact Bobath asking for advice about their child’s diagnosis or general concerns and she arranges for them to have an initial consultation appointment held with the senior therapist and herself.
Glenys organises regular coffee mornings for parents and family members and in recent years has organised a number of seminars which have covered subjects relevant to having a child with cerebral palsy. Glenys completed a general counselling course in 2004.
If you have any questions about Bobath therapy and cerebral palsy please give Glenys a call on 029 20522600 or email firstname.lastname@example.org
Opportunities to meet other families
Glenys sends families a regular bulletin with news and current topics and holds regular coffee mornings for all the family; which offers an ideal meeting place for parents and grandparents to meet other families in their situation.
Glenys will be holding a number of coffee mornings; which are open to all families and children who attend Bobath Wales. Everyone is very welcome (parents, grandparents, aunts etc.) and it is an ideal way to meet other families who have a child with cerebral palsy.
If you would like to attend it would be appreciated if you could email or phone Glenys to let her know you will be attending on email@example.com or 02920 522 600
Regular coffee mornings will be held on the 1st Wednesday of each month at the Bobath centre. All coffee mornings will be held between 10am – 12noon. The next one will be on Wednesday 4th January.
Read the words of Matthew dad to Macsen as he explains the difference Glenys and our Family Support Service has made to his family.
I am writing this letter as a parent of a child with multiple severe disabilities. My son Macsen is 4 years old and has Quadriplegic Cerebral Palsy, Visual Impairment, uncontrolled Epilepsy and lots of other problems.
Life for a family like ours is very challenging and at times it almost feels impossible. We attend a minimum of 2 medical appointments a week, have to perform medical activities that many nurses are not insured to perform as well as trying to live a normal life (especially for Macsen’s older brother Ioan).
Where possible we try to focus on the positive aspects of our lives and Macsen’s development; Bobath’s core therapy services help this by showing what is possible, but it’s not that easy. Around a year ago Macsen’s health deteriorated significantly and so did our positivity. We both stopped coping, our family was breaking down and I had to stop working.
This is where Bobath’s family support came in. Glenys is our family support worker who has looked after us since Macsen was 9 months old. During the first 2 years Glenys acted as a shoulder to cry on for both of us, but when we hit rock bottom we realised her real value. Over the years she had gotten to know us very well and we had built up the confidence to confide in her that we were not coping.
The advice we got from Glenys was invaluable. She helped up to deal with the situation emotionally, but as a mother of a grown up disabled child she was able to empathise and share her experiences. As well as direct us to the relevant NHS/Social services we were entitled to. Things are still hard for us, but improving. Glenys keeps in contact and we enjoy catching up at any opportunity.
I hope you can help to fund such posts in the future, for other families as they go through hard times, but also for us as I’m sure we will be crying on Glenys’ shoulder in the future.